Browsing by Author "Hamid, SA"

Filter results by typing the first few letters
Now showing 1 - 2 of 2
  • Thumbnail Image
    Publication
    Development of the pediatric neuro-oncology services assessment aid: An assessment tool for pediatric neuro-oncology service delivery capacity
    (Oxford University Press, 2024) Rajagopal, R; Coronado, RD; Hamid, SA; Martin, del, Campo, RN; Boop, F; Bag, A; Reséndiz, AEB; Vasudeva, Bhat, K; Campos, D; Chang, K; Cirt, R; Rahmartani, LD; Foo, JC; Hoveyan, J; Lucas, JT,, Jr; Ngcana, T; Ul, Ain, R; Omran, N; Osorio, DS; Qureshi, BM; Sabin, ND; Schandorf, E; Bankah, P; Dadzie, M-A; Gbadamos, H; Sharafeldin, H; Somathilaka, M; Yang, P; Jean-Jacques, YA; Zhang, A; Salman, Z; Gonzalez, M; Friedrich, P; Rodriguez-Galindo, C; Qaddoumi, I; Moreira, DC
    Background. To enhance the quality of care available for children with central nervous system (CNS) tumors across the world, a systematic evaluation of capacity is needed to identify gaps and prioritize interventions.To that end, we created the pediatric neuro-oncology (PNO) resource assessment aid (PANORAMA) tool. Methods. The development of PANORAMA encompassed 3 phases: operationalization, consensus building, and piloting. PANORAMA aimed to capture the elements of the PNO care continuum through domains with weighted assessments reflecting their importance. Responses were ordinally scored to reflect the level of satisfaction. PANORAMA was revised based on feedback at various phases to improve its relevance, usability, and clarity. Results. The operationalization phase identified 14 domains by using 252 questions.The consensus phase involved 15 experts (6 pediatric oncologists, 3 radiation oncologists, 2 neurosurgeons, 2 radiologists, and 2 pathologists). The consensus phase validated the identified domains, questions, and scoring methodology.The PANORAMA domains included national context, hospital infrastructure, organization and service integration, human resources, financing, laboratory, neurosurgery, diagnostic imaging, pathology, chemotherapy, radiotherapy, supportive care, and patient outcomes. PANORAMA was piloted at 13 institutions in 12 countries, representing diverse patient care contexts. Face validity was assessed by examining the correlation between the estimated score by respondents and calculated PANORAMA scores for each domain (r = 0.67, P < .0001). Conclusions. PANORAMA was developed through a systematic, collaborative approach, ensuring its relevance to evaluate core elements of PNO service capacity. Distribution of PANORAMA will enable quantitative service evaluations across institutions, facilitating benchmarking and the prioritization of interventions.
  • Thumbnail Image
    Publication
    Utilizing Multilingual Methods and Rapid Analysis for Global Qualitative Research During a Pandemic
    (SAGE Publications Inc., 2022) Graetz, DE; Sniderman, E; Villegas, C; Ragab, I; Laptsevich, A; Maliti, B; Naidu, G; Zhang, H; Gassant, P; Nunes, L; Arce, D; Vasquez, JM; Arora, RS; Alcasabas, AP; Rusmawatiningtyas, D; Raza, MR; Hamid, SA; Velasco, P; Kambugu, J; Vinitsky, A; Bolous, NS; Haidar, CE; Bihannic, L; Sa da Bandeira, D; Wang, JX; Li, D; Graca, F; Vasilyeva, A; Lesmana, H; Galindo, CR; Agulnik, A; Moreira, DC
    Historically, qualitative research has complemented quantitative biologic and epidemiologic studies to provide a more complete understanding of pandemics. The COVID-19 pandemic has generated unique and novel challenges for qualitative researchers, who have embraced creative solutions including virtual focus groups and rapid analyses to continue their work. We present our experience conducting a multilingual global qualitative study of healthcare resilience among teams of pediatric oncology professionals during the COVID-19 pandemic. We provide an in-depth description of our methodology and an analysis of factors we believe contributed to our study’s success including our use of technology, engagement of a large multilingual team, global partnerships, and framework-based rapid analysis. We hope these techniques may be useful to qualitative researchers conducting studies during the current pandemic, as well as for all pediatric oncology studies including multiple languages or geographically disparate subjects.